Last year’s ‘about’ – why the teenage cancer trust.

13 07 2009

I need to remove this from the ABOUT page because this year its going to be about something different, but I didn’t want to lose it entirely. I wish I could some how archive the whole blog into chapters, but that doesn’t seem poss.

Anyway.

Write, time to sort out this ABOUT page thingy.

I’m blogging today for the Teenage Cancer Trust because:

every day in the UK, up to 6 teenagers/ young adults can find out that they have cancer. Yes, I did say – every day, 6 young people aged 13 – 24 – discover that they have cancer. Hat’s 2100 new cases per year. That doesn’t lose the ones who were already diagnosed and fighting their illness, but it adds 2100 young people per year.

Young adults contract some of the most aggressive cancers, which can be made worse by their growth spurts.

Sadly because only 0.5% of all cancers occur in teenagers and young adults, they are often misdiagnosed at first. If diagnosis is delayed, the cancer has time to progress thus decreasing chances of survival and excluding young people from clinical trials.

Up until the age of 16, most teenagers will probably be treated in a paediatric ward where toddlers and young children are also being cared for.

Over the age of 16 and our young person is likely to find themselves in an adult ward with much older and probably quite elderly patients. I experienced this when I was 25 (not with cancer, but a woman in the bed next to mine who screamed all night and was delirious all day with alzheimer’s and the lady opposite who seeking the fastest way out of this world). Youngsters aged 16-24, faced with a disease that threatens their own lives, should not have to deal with this added burden.

Even after finishing treatment, teens can struggle with personal and professional issues that are inadequately addressed.
– There is a lack of ongoing support from the NHS and other services once treatment is finished and there can be difficulty pursuing a chosen career because they are considered a health risk.
– Insurers or pension schemes can be reluctant to provide cover, and ex-patients often find it a struggle to get a mortgage—the list goes on and on.
Teenagers need support beyond treatment, and general awareness of the issues they face, to help them move forward. Can you imagine facing prejudice your whole life, because you were lucky enough to survive a killer disease that struck you in your teens?

· Cancer is the most common cause of non-accidental death at this age. Incidence rates are now higher in teenagers and young adults than in children, yet survival rates fall behind those of children and older adults.

Teenage Cancer Trust exists to ensure that teenagers and young adults are diagnosed efficiently, treated effectively, and have the support they need to make it through their treatment and rebuild their lives after cancer.

There are so many different types of cancer that when I first thought of blogging with cancer in mind, I initially began thinking of breast cancer, prostrate cancer, skin cancer, lung cancer, bowel cancer. All of these have struck people I love and care about. I thought of raising money for MacMillan Cancer Support who has supported those I have cared about. In all of these areas there are honorable and deserving charities and many fellow bloggers will be raising money for Cancer Research.

Two weeks ago I went to an open concert organised in an orchard in the heart of Kent. It is organised each year by a brave and hard-working family for Teenage Cancer Trust. As of that moment I decided to blog for them today, as they encompass all types of cancer and work for those who may be hardest hit, but from whom there is so little support.

Can you imagine being 15? Hormones away? Your biggest worry should be how to chat up the girl in the front row, or who Jonny fancies or is your hair straightened properly and suddenly it becomes,” Will I live to be 20?”

If we can give some hope to these youngsters, some comfort, some adequate support and some appropriate treatment, then let’s try together to do just that.

I hate asking for money, but if you can, please just pop along here to sponsor me and raise money for the Teenage Cancer Support!

Many, many thanks in advance,

Moira

And then the general FAQ

What is a ‘Day of Blogs?’

Day of Blogs has been invented this year to replace the ‘blogathon’ by a really brave bunch of individuals, notably Khouria Jen. She decided to initiate the Day of Blogs when the life stepped up and got in the way for the three fantastic organisers of the usual Blogathon. You can find her blog here: http://khouria.wordpress.com/, and she’ s blogging for a really worthy charity called First Book which makes books available for primary age children. Very important that. And just importantly, Jen deserves real Kudos as she has been organising this despite bad migraines and more recently a broken foot.

So… frustrated yet? What is a blogthon?

Well, a blog – short for Weblog – is a little personal site that is updated regularly and can be on any topic, theme or whatever else you fancy.

A thon – well, think of a marathon – think any race that you have to continue over an extended period of time.

So, a blogathon – 48 entries over 24 hours, one every 30 minutes.

Oh and look…. I have one minute left to get this posted.

If you want to know more about the blogathon and Cat Connor the original insitgator of all this fun and madness, not to mention huge benefits for charity, then why not pop along here? ttp://www.dayofblogs.org/?page_id=2

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seven months – actually eleven now…

4 07 2009

I put this blog to bed right after the thon. Never did come back and write the tributes to the kind people who sponsored me. Never did really write about why I had chosen this particular organisaiton. Never did many things.

And now I’m warming up for the thon 2009 and can’t remember how this blog actually works. ahhhhhh. Need to change the header and can’t remember how. Bum diddy bum diddy bum bum bum.





Staying up late, because I can!

4 07 2009

It’s blogathon time again and I need to get this blog into shape for 25th July. We’ll be hitting off pn Saturday at 3pm CET(horrible time) and blogging through the night and right through Sunday until 3pm CET. And then I’ll be snoring. Hopefully.

Of course, this year is a tad different to the last two. This year I have a little baby to think of too. He’ll just have turned three months old when the blogathon begins and I’ll be needing to feed him, change nappies and most of all, sleep or I’ll become a foul mum just for a few quid. So, forgive me, but this year I will be pre-writing some of the entries and I will be enlisting the assistance of my hubby to help me post in dire moments.  I’m sure you understand why though.

And now, I’ll be blogging for the ME Association this year. A cause very close to my heart. You want to find out why, then you’ll have to stop by and check out the blog.

I’m doing it, because I can. Because this may be the last year that I can. Just because I can.





THANK YOU!!!

27 07 2008

Firstly to Jen Khouria for stepping and in initiating the Day of Blogs.

To everyone else who signed up to help and make this possible.

To my monitorees who have blogged bravely throughout the night and have given me a purpose and a goal and an occupation other than thinking of my own weariness.

To Renee who held my hand without being my monitor. Who took part in my Best Entry competition and who has written from the soul about depression.

To Jessica my monitor who looked in on me and encouraged me. Who understood.

To ALL my friends who took the time to come and support me – most of them yesterday AND today and some in the deep dark hours of the nigth. THANK YOU. THANK YOU

To those friends who delved deep into their pockets to help me reach my target. THANK YOU TOO!!

To my husband, who has fed me (wasaby?????? – sorry where was I?) delicious things, brought me bread today and a yummy cream cake from the bakers. Who pretended to watch Nemo last night. 😉

And lastly, to Mischief, who shared my sandwich, kept me warm, didn’t leave my side for a minute during the night, who tried to keep me awake with a ball and who is now, clearly, completely exhausted by the whole thing. 🙂

 

THANK YOU!!!





Almost there 14.30

27 07 2008

Its a shame I wasn’t more ‘organised on this this year. There is much more I ‘could’ have done…. on the other hand, given that three weeks ago I wasn’t even going to blog, that I moved ‘semi-homes’ three days ago and that all my stuff is still in bags in the kitchen, well… you know… actually, this is alright.

I’m likely to come back in the coming days and link  up entries from other blogs I didn’t get to read, just cos there wasn’t enought time.

And I’m likely to come back and try out some of the prompts I didn’t get to use and more specifically, use this blog as a place to store pics and tales that I’m happy to share with my friends here.

And… I might just do that cancer awareness thing I was meant to be doing. I do believe the work that TCT does is important and if I’ve learnt one thing today, it’s to get those entries at least written and perhaps even up and posted before the event.  19 people checked in here before I began and the site was empty….. shame on me….

but hey, I was here, flying by the seat of my pants. good job I wear big fat woolley bloomers. 🙂 Not.





Best entry competition – 14.00

27 07 2008

I’m late posting. Onlyy 3 left to go now.  But you’ll forgive me I’m sure, because I’m trying to instigate the Best Entry competion over on the main page: www.dayofblogs.org and the forum  http://blogathon.org/forum/viewtopic.php?id=890

A bit of history. Last year I won this in the main thon with the entry below. It totally rocked my world because I’d been doing this to ‘write’ and to ‘make a difference’ and I’d told virtually no one and therfore got a small amount of sponsorship.  And, it swelled my ego, honestly, what else do you think? 😉

Anyway, the young man in question told me this year that he’s training to run a big sponsored race next year. I promised that if he got of the teachers to let me know, I’d sponsor him next year. He kept me going last year and taught me a huge lesson. 🙂 A special thanks to him.

My Hero – my lesson. 9am Sunday, July 29, 2007

A few weeks back I had the privilege of helping out a sports day in a large comprehensive school. All the fast kids were doing the sprints and all the non-sporty kids were sitting on the ground to watch. My job was to lead the cheering, keep the watchers motivated in watching and the runners running fast. I didn’t realize that screaming myself hoarse and playing the clown was part of my job description when I signed up to be a teacher, but you know, as things go, there are far worse jobs I could be doing.
 
So there I was, leaping up and downn when suddenly I saw one of ‘my kids’ out there on the track. ‘My’ Tommy* was about to run the 400 meters.
 
Now Tommy is a smaller lad than many of his class mates. He is a lovely, rosy cheeked, polite and respectful young thing who finds himself in a class of loud-mouthed, hyper-active kids who have little interest in still sitting on their chairs for two minutes flat. Tommy is not the brightest spark in the fire, but he tries hard.
 
Tommy taught me a fabulous lesson that day. He has a sight disorder. Without his glasses he probably couldn’t see his hand stretched out in front of his face. To work, his sits with his nose pressed to his laptop. He instinctively knows where the keys are, writing is hard.
 
That sunny day, Tommy ran the 400 meters. He probably couldn’t see the track markings but he stayed within his lane, albeit wandering from side to side. He ran all the way, even though he came in a good 100 meters behind the other competitors.
 
But Tommy ran that day. He gave it his all and the next day he told me that he had only been down as reserve for the 100 meters. He put his name down because no body else would and you got points for having competitors. He did it to help his team.
 
Tommy didn’t win any medals that day. He didn’t have any glorious finishes like some of the stunning budding young athletes out there on the field. But Tommy stole my heart during that race and taught me one of the greatest lessons I have learned. Hold your head high, stand up and be counted and get out there and do your thing! Be proud to have done it because many others don’t dare to do the same and many more just couldn’t be bothered to make the effort.
 
Go Tommy!
 
* Please note, Tommy’s name has been changed for obvious reasons.

<< : Seven Days 8.30am




Another B-Blogger

27 07 2008

I’m late – scandalously slow. I apologize. I danced the Time Warp and er, warped right of time.

On my last post I forgot a B-Blogger so please, if you have time to come after you’ve had a nap, it would bbe great if you could look in on Linda. She is blogging for Christian Children’s Fund. http://www.christianchildrensfund.org/

And on that note, I’d like to say thank you too to all the people who have kept me going, all my monitees who are still going strong and particulary Aurora Lamour , Renee  and Jessica.

 

And bugger – this is on the wrong blog again. How do I keep doing that? GRRRRR.