Last year’s ‘about’ – why the teenage cancer trust.

13 07 2009

I need to remove this from the ABOUT page because this year its going to be about something different, but I didn’t want to lose it entirely. I wish I could some how archive the whole blog into chapters, but that doesn’t seem poss.

Anyway.

Write, time to sort out this ABOUT page thingy.

I’m blogging today for the Teenage Cancer Trust because:

every day in the UK, up to 6 teenagers/ young adults can find out that they have cancer. Yes, I did say – every day, 6 young people aged 13 – 24 – discover that they have cancer. Hat’s 2100 new cases per year. That doesn’t lose the ones who were already diagnosed and fighting their illness, but it adds 2100 young people per year.

Young adults contract some of the most aggressive cancers, which can be made worse by their growth spurts.

Sadly because only 0.5% of all cancers occur in teenagers and young adults, they are often misdiagnosed at first. If diagnosis is delayed, the cancer has time to progress thus decreasing chances of survival and excluding young people from clinical trials.

Up until the age of 16, most teenagers will probably be treated in a paediatric ward where toddlers and young children are also being cared for.

Over the age of 16 and our young person is likely to find themselves in an adult ward with much older and probably quite elderly patients. I experienced this when I was 25 (not with cancer, but a woman in the bed next to mine who screamed all night and was delirious all day with alzheimer’s and the lady opposite who seeking the fastest way out of this world). Youngsters aged 16-24, faced with a disease that threatens their own lives, should not have to deal with this added burden.

Even after finishing treatment, teens can struggle with personal and professional issues that are inadequately addressed.
– There is a lack of ongoing support from the NHS and other services once treatment is finished and there can be difficulty pursuing a chosen career because they are considered a health risk.
– Insurers or pension schemes can be reluctant to provide cover, and ex-patients often find it a struggle to get a mortgage—the list goes on and on.
Teenagers need support beyond treatment, and general awareness of the issues they face, to help them move forward. Can you imagine facing prejudice your whole life, because you were lucky enough to survive a killer disease that struck you in your teens?

· Cancer is the most common cause of non-accidental death at this age. Incidence rates are now higher in teenagers and young adults than in children, yet survival rates fall behind those of children and older adults.

Teenage Cancer Trust exists to ensure that teenagers and young adults are diagnosed efficiently, treated effectively, and have the support they need to make it through their treatment and rebuild their lives after cancer.

There are so many different types of cancer that when I first thought of blogging with cancer in mind, I initially began thinking of breast cancer, prostrate cancer, skin cancer, lung cancer, bowel cancer. All of these have struck people I love and care about. I thought of raising money for MacMillan Cancer Support who has supported those I have cared about. In all of these areas there are honorable and deserving charities and many fellow bloggers will be raising money for Cancer Research.

Two weeks ago I went to an open concert organised in an orchard in the heart of Kent. It is organised each year by a brave and hard-working family for Teenage Cancer Trust. As of that moment I decided to blog for them today, as they encompass all types of cancer and work for those who may be hardest hit, but from whom there is so little support.

Can you imagine being 15? Hormones away? Your biggest worry should be how to chat up the girl in the front row, or who Jonny fancies or is your hair straightened properly and suddenly it becomes,” Will I live to be 20?”

If we can give some hope to these youngsters, some comfort, some adequate support and some appropriate treatment, then let’s try together to do just that.

I hate asking for money, but if you can, please just pop along here to sponsor me and raise money for the Teenage Cancer Support!

Many, many thanks in advance,

Moira

And then the general FAQ

What is a ‘Day of Blogs?’

Day of Blogs has been invented this year to replace the ‘blogathon’ by a really brave bunch of individuals, notably Khouria Jen. She decided to initiate the Day of Blogs when the life stepped up and got in the way for the three fantastic organisers of the usual Blogathon. You can find her blog here: http://khouria.wordpress.com/, and she’ s blogging for a really worthy charity called First Book which makes books available for primary age children. Very important that. And just importantly, Jen deserves real Kudos as she has been organising this despite bad migraines and more recently a broken foot.

So… frustrated yet? What is a blogthon?

Well, a blog – short for Weblog – is a little personal site that is updated regularly and can be on any topic, theme or whatever else you fancy.

A thon – well, think of a marathon – think any race that you have to continue over an extended period of time.

So, a blogathon – 48 entries over 24 hours, one every 30 minutes.

Oh and look…. I have one minute left to get this posted.

If you want to know more about the blogathon and Cat Connor the original insitgator of all this fun and madness, not to mention huge benefits for charity, then why not pop along here? ttp://www.dayofblogs.org/?page_id=2

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seven months – actually eleven now…

4 07 2009

I put this blog to bed right after the thon. Never did come back and write the tributes to the kind people who sponsored me. Never did really write about why I had chosen this particular organisaiton. Never did many things.

And now I’m warming up for the thon 2009 and can’t remember how this blog actually works. ahhhhhh. Need to change the header and can’t remember how. Bum diddy bum diddy bum bum bum.





Staying up late, because I can!

4 07 2009

It’s blogathon time again and I need to get this blog into shape for 25th July. We’ll be hitting off pn Saturday at 3pm CET(horrible time) and blogging through the night and right through Sunday until 3pm CET. And then I’ll be snoring. Hopefully.

Of course, this year is a tad different to the last two. This year I have a little baby to think of too. He’ll just have turned three months old when the blogathon begins and I’ll be needing to feed him, change nappies and most of all, sleep or I’ll become a foul mum just for a few quid. So, forgive me, but this year I will be pre-writing some of the entries and I will be enlisting the assistance of my hubby to help me post in dire moments.  I’m sure you understand why though.

And now, I’ll be blogging for the ME Association this year. A cause very close to my heart. You want to find out why, then you’ll have to stop by and check out the blog.

I’m doing it, because I can. Because this may be the last year that I can. Just because I can.